Sunday, 4 September 2016

6 days and counting

This time next week it will be all done ..... and so will I, done in !

I was diagnosed with Multiple Sclerosis in 1999. That summer we (Hubby, Dad and our two children) had enjoyed an amazing end of May holiday in Austria. A beautiful place, lots of walking, including up the small hill next to our campsite. I was a typical 34 year old mum, our children just 8 and 5.
At the top of Austria's highest mountain - the Grossglockner
with Philippa and Michael (1999)
Picnic in the mountains (1999)
The last half term at school suddenly seemed tricky, I realised I needed longer and longer to walk to and from school to meet the children. My legs also began to feel numb and it increased upwards. Our GP and subsequently the hospital specialist were amazing and within a couple of weeks I'd been in hospital, had many tests and the diagnosis given.

And so life went on - it took many many weeks to start walking again but with my families help I could again get to school and back. Some things did not improve 100%, the palm of my right hand remained numb and now 17 years on both my hands feel like I am permanently wearing gloves.

My legs have surface numbness, quite often tremours inside and my walking at times is very slow. The bottom of my feet can have pins and needles when I'm tired, my hands don't always grip things if I'm not actually looking them - not funny in the night when trying to grab the bed covers !!

Heat can be an issue as I feel totally drained and if too hot I lose the vision in my right eye, and without going into any detail there are days when my insides are not so good ;-\

But my life is good - in fact it's pretty amazing - if anything my MS has given me extra strength. I always wanted to teach but things didn't evolve that way when I left school in 1982. As I recovered back in 1999 I decided I would like to restudy and get my teaching degree - and I did, graduating in 2004 the day before my 39th birthday.

Oxford Brookes Univeristy 2004
My facebook, Twitter, Instagram, and blogs are full of our holidays, my stitching, my wine tasting, events I've organised and fundraising I've done. I'm a very positive person and for me there isn't any point or benefit in showing the world the bad days so to the world everything looks good (and it is).

The photos rarely show me standing, it's far easier to smile when sitting down as I don't have to worry about holding on to anything to keep my balance. It's easy to organise events as I am in control and can plan around my need to rest or have quiet days. It's easy to do my cross stitch as it's just holding a needle (so long as I watch to make sure my hand hasn't let go) however I no longer knit as I haven't the movement in my hands.

I am no longer teaching, but am happily looking after our home and my family. My MS was not a reason for leaving but being able to plan my time myself has been a huge help in keeping control of my symptoms. I spend my time writing my three blogs; Aimetu's, Aimetu's Stitching and for the last year this one.

I also run two forums; Needlecraft Haven and Cuvée Reserve. The first being for my crafty friends, a place we share our work including my baking (MS Cake Bake especially) and the second is all about wine - my joint hobby with my lovely Hubby. We've held some great wine tasting events and holidays too, anything is possible with planning and timing and determination!

Holiday picnic this summer in France (sitting down haha)
Stitched gifts for my colleagues
when I finished teaching (2013)
Wine tasting weekend earlier in 2016 with my Cuvée Reserve friends

I'm not sure I would do quite so much if I didn't have MS - maybe that sounds odd but I am determined not to let it rule my life and that being said maybe I try to do too much - if there is such a thing!!

The MS Society is an amazing organisation - looking at their web page alone gives so much support to so many. There is of course all the offline support and advice, the many links to other organisations that can help, the feeling of not being alone and the endless and amazing research. Things have changed so much since my diagnosis in 1999 and with all their hard work there is so much more information and support.





Thank you to everyone who has donated - 25% of all donations will go to MS Society. You can follow their amazing work on Facebook, Twitter and Instagram. 

If you'd like to donate directly to the MS Society please use this link - Donation for MS Society

Saturday, 3 September 2016

7 days and counting

But where was 8 days ????

Well I was counting including the current day but if I count tomorrow as day 1 there's just 7 to go !!

Counting and maths has been a huge part of the Challenge - dates, miles, time and of course donations.



I am so so grateful to everyone who has donated - the total today is amazing, I really didn't expect to raise so much for my chosen charities.


This was always a personal challenge but it seemed only right to use the event to help others too.


When I started I hoped to raise £100 for each charity - it's so humbling to see how much more has been given.


Thank you to everyone -  small or large donation put together can make such a difference.



Dates have been a tricky side to this Challenge - we are quite busy, I have a very active life (although most things involve sitting the car or on a bench or in a pub!!) so balancing our lifestyle with my rest and the walks was not always easy.
Any excuse to put their photo up haha

The day (or few days) before a walk need to be quite easy, not doing nothing but no long drives, or walks and the following day is usually a wipe out. Sometimes it's been a sofa day, sometimes I've gone out but needed a trolley for support (Majestic Leicester haha).

I am not sure what will happen next Sunday - the walk will be tiring but then I have the emotional excitement (and a little more walking) of Proms in the Park with Michael Ball and Alfie Boe.

Our picnic chairs are a vital part of the packing for the weekend :)

Mileage - mmmmm - 26 isn't it ? Well actually not for me - we've walked far more than the London Marathon as with getting to and from the station at home, round train stations with their many stairs and tunnels, getting the the various start points and getting back to a tube from various finish points has added an amazing amount to my walk.

It's hard to calculate exactly, especially the walking in tube stations to change trains but a quick add up of just getting to and from each start/finish point is an additional 6 miles over the 7 routes.

So a week today we'll be walking the 'last leg' - hopefully the weather will be kind.

I've put a request in with Matt Taylor and BBC weather so fingers crossed.

9 days and counting

So just 9 days to go, this time next week we'll be packing ready to leave for London just after mid-day. Our son and his girlfriend are travelling with us in our car as this time we're driving down. Our daughter who lives in Cardiff is meeting us there; her journey is by National Express as the train was quite expensive.

Talking of trains I 'd like to use today's post to say a really big THANK YOU to Virgin Trains. This time last year I contacted them and asked if they would be able to give me a set price ticket for each of our journeys.

One of the main problems or me with MS is fatigue - yes I know looking at my wine/travel blog Aimetu's, my Facebook and Twitter we always seem so busy, but I only post the good stuff not the details of some days it's nearly mid-day before I get dressed or how I'm asleep on the sofa mid afternoon or most of an evening.


That being said I knew sometimes we'd miss the best fare on the train as it would be quite close to the weekend before I would know for sure if we could go.

Sadly Virgin Trains couldn't offer that .... but to my astonishment they offered Hubby and me free travel for each trip.

I was really surprised and did explain it would be 8 journeys but they still said yes.


I was even more shocked when each journey ticket we requested came through as First Class ! That made a very big difference in that after each walk when I really struggle to get going we could use the First Class lounge at Euston for a rest, a coffee, the loo and advance notice of the departing platform so I had time to get there. It did also mean that our carriages were the nearest to the exits both at home and in London - a real bonus on an 11 carriage train.


Things change in business and a year is a long time - unfortunately Virgin's charity policy changed and they now focus all their charity work to one charity.                                                                                                                                                                                                            It is good to support many but it is equally as good to give more to just one. I completely understood and will always be grateful for their support on Routes 1 - 6 - without it my Challenge would have been a lot harder, added walking at the stations and of course financially


Thank you so much to all the media team, train staff and lounge staff at Virgin Trains.

We decided to do Route 7 on a week day - this caused a little problem. Looking at taking the train it soon became apparent that both the times and cost was against us so we decided to drive. Here came the next issue - parking.

Majestic Wine Docklands was the finish point for Route 6 and would be the start of Route 7. They were amazing in allowing us to park in their car park all day - as I'm sure you'll appreciate parking in London is very expensive and quite limiting.


Using Majestic's car park made Route 7 easier both in setting off, returning via the DLR and of course refreshment at the end !! Thank you Majestic !!

Route 8 is a little easier - as we're staying for the whole week we'll be parking at our hotel. We mainly use Accor Hotels, both here in the UK and in France and will be staying in one of their hotels neat the Excel Centre. Our son now works for one of their Mecure hotels here in the Midlands.

Transport sorted then from Route 1 to Route 8 - I really appreciate the help from everyone - just need to keep my personal method of transport going for one last time !!

Thursday, 1 September 2016

The Countdown begins

Just ten days until my final walk - the last year has been amazing and I do have to re-read my blog to take in just what we've done !!



Today starts the countdown to 10th September and the last few miles to The Mall which is the official finish of the London Marathon - I'm not sure exactly there but I'll find out before the 10th.


I'm so so pleased that we will be walking this last bit as a family;
our daughter, our son and his girlfriend will be joining Hubby and me.

Especially nice as it is my birthday and a year since I announced my challenge.




We are actually staying in London for the weekend - with walking, excitement and emotions I don't think the journey to and from our capitol city would have been possible. It does mean we can all celebrate my birthday.

My lovely Hubby has tickets for the two of us to go to Proms in the Park on Saturday night - a perfect end to my Challenge and birthday celebration - especially as Michael Ball and Alfie Boe (my absolute favourite) will be performing.

Alfie Boe & Michael Ball












But before all that excitement there are a few steps to take from Tower Bridge to The Mall. The route goes along the Thames past many famous London landmarks with views of others across the water. Lots of photo stops which are always good for my legs.

Route 8 on Google Earth
Google Maps
I have not yet looked at rest stops or at restaurants for a celebration meal afterwards - that will keep me occupied over these countdown days (I am getting quite excited already)

You are very welcome to join us on this final part of my Challenge - email me for our estimated schedule aimetu.clare@hotmail.com

Sunday, 7 August 2016

So so grateful to everyone

Last night my fundraising page reached (and went over) the target I had set for my Challenge. 
As I have said many times this is personal challenge, not a big publicity bucket shaking t-shirt wearing event just a quiet stroll every month or so for me and my lovely Hubby to prove I can do the London Marathon.

That being said I decided it would be a missed (and wasted) opportunity if I did not use it to raise some money for four charities that mean a lot to me in various ways. When I set up the fundraising page I did not add a target as any donation would help, I was hoping for £100 per charity but any money raised is important.

To my surprise many people donated and quite quickly it looked like each charity would receive the £100, but in the last few months the donations have jumped up so quickly. So quickly and in such amounts that I thought why not set a target and see - so £1000 target was set.

I cannot express how grateful I am to everyone who has donated - you are all amazing, so kind and very generous.

I am also so grateful to all the support I've had with my Challenge which initially was just an thought but with my lovely Hubby's support became possible.

Just over 3 miles to go - Saturday 10th September - it will be a very special birthday, made even knowing my four charities will all now be receiving over £250 and my target has reached it's amazing
🎉🎉🎉🎉🎉  £1000 🎉🎉🎉🎉🎉



Monday, 1 August 2016

Aspen Way to Tower Bridge

I had to pinch myself that we were actually about to do the penultimate trip - this time last year it was a dream that my lovely Hubby encouraged me to believe in, and now, having completed Route 7 I am just over 3 miles from completing Clare's Challenge 50.

So how did Route 7 go ... well not a good start. Unfortunately Virgin Trains could no longer help with transport and as we chose to do this trip on a weekday the train availability did not suit either. We decided to drive and looking at the various traffic reports chose the M1 following the sat nav to our starting point - what a mistake ....
M1 going nowhere 
3 hours after leaving home we arrived at our destination, Majestic Docklands. I have to say a huge thank to them for coming to our rescue by providing parking for the day, a small thing that meant so much.
Majestic Wine Docklands 
Starting point at Aspen Way island
Route 7 started with a little cheat - the Marathon route actually goes up onto Aspen Way on the dual carriageway, along a short way, crossing over to the other carriage way and back to the island. This can only happen with a road closure and although I am special I'm not that special so we had to just go under the dual carriageway bridge and round the island - a little disappointing but including all the getting to and from start/end points I have walked far more than the 26 official miles.

Setting off down Poplar High Street I wasn't sure what buildings or places of interest we'd see, in fact I wondered if I'd need to take any photos at all. How wrong could I be, as always if you look around there is plenty to surprise you.

My first surprise was a whole row of 'Boris bikes' - so tempting - reasonably priced transport for anyone wanting to cycle around London. It was quite a sight seeing the bikes all in a row - Santander Cycles.
Peddle Power
Looking over my left shoulder I had an amazing view of the sky scrapers of Canary Wharf - having had these giants in front of me, behind me, in front of me again it was a good feeling to finally leave them behind.
Sky Scraper of Canary Wharf
Hubby and I have recently enjoyed some time in the Cotes du Rhone region of France, wine being a great hobby of ours. We also have a vine growing in our garden, just starting to produce grapes. Imagine our surprise when we spotted this vine doing very well in the city climate.

Vines of London
From Popular High Street we moved into Pennyfields and onto West India Docks Road. A couple of things caught my attention here, firstly dragons on a pole but I have no idea why or what their purpose was, and secondly on the Police Station wall a plaque announcing the first YMCA hostel for men.

Interesting yet unknown dragons
Plaque on the Police Station wall marking a moment in history.
West India Docks Road ended at a junction with Commercial Road, the A13 that we had driven down earlier. On the corner was a building we had seen from the car with inscriptions on both walls; known as the Sailor's Palace it was opened in 1901 and was the Headquarters for the British and Foreign Sailors Society.


Sailor's Palace
As we followed Commercial Road round there was a building that caught my eye, not for it's great history, its architecture or any signage; it just looked so sad. My father-in-law worked in the motor trade, as does Hubby and my grandfather worked for Rolls Royce - this building reminded me so much of times gone by, old cars, old mechanics, old mates and I felt a little melancholic looking at this garage which I expect was once a hive of activity with cars, smelling of oil and bustling with customers.
V.I.P. Garage - many years ago I expect it was
 I did find out a little about the building's orginial use 'This workshop was built in 1869 as a sail-makers’ and ship-chandlers’ warehouse. It was occupied by Caird & Rayner from 1889 to 1972 and was never substantially altered, so the building retains its original cast-iron window frames and two double loading doors that open on to the Limehouse Cut.' There is more information on Derelict London's web site, I find all this history quite fascinating.

Our side of the road was St Anne's Church, a little hidden by trees but we could see many of the gravestones, including an obelisk. The church was built in 1714-1727 and was named after Queen Anne. Having been gutted by fire on Good Friday 1850 it's rebuild was completed in 1854.  The church has a great connection with the Royal Navy as it's clock is a maritime clock that used to strike every quarter to guide the 6000 ships that used to moor in the dock. The golden ball high above the steeple was a sea mark for navigating the Thames.


Grade II listed pyramid - originally designed to be inside the church
St Anne's Church and its maritime clock.
Limehouse Cut looked so tranquil with its boats and smooth water. It was built to join the Lee Navigation to the River Thames; it now runs into Limehouse Basin.  

Limehouse Cut with the DLR passing by
Salmon Road joins Commercial Road making a small triangle of ground on which is this anchor, not a very good photo but without crossing the road it was hard to see it. It's presence on this busy street is explained by the building on the corner - The Mission. This was built in 1923 and was originally a Seamen's Mission; it has now been converted into apartments.

Anchor away
The Seamen's Mission.
To my surprise we had now walked over a mile and a half. Always slowly but my legs felt quite good. I have been going to the gym (nothing major, mainly strength work and a bit of swimming) and my legs felt quite strong. The main problem I have with my MS is although my legs/arms have strength they do not respond well therefore making me slow. I am also finding lately that I can do far more sitting than I can standing and my walking has a slight wobbly.... as you'll see later.

Anyway back to the sights of London; what a lovely view over Regent's Canal into Limehouse Basin. Canal locks, footbridges and DLR overhead showing just how varied London is.
Regent's Canal
By now I was needing a rest, Husk Coffee & Creative Space offered the solution. Great coffee, delicious salted caramel cake and comfy chairs giving me a much needed boost.

Coffee and cake at Husk
Route 7 took a turn into Butcher Row, passing under the DRL and on towards Limehouse Tunnel. Hubby spotted a blue plaque, one a just a few we've seen on our journey. This was for Reverend John Groser 1890-1966 a priest and social reformer.


Rev. John Groser's house
Blue plaque erected 1990
Back on familiar ground, Butcher Row lead us to The Highway. Previously on Route 5 we had turned at this point into Narrow Street as the main road disappears into Limehouse Tunnel. This time we turned west and retraced our steps all along The Highway back to Tower Bridge. It's a long road that didn't seem so far last time, I guess that is because it was the start of the route whereas today it was my last part and by now my legs were very slow and getting painful. There were still a few things to see, or re-see!
Free Trade Wharf 
Tobacco Dock
St George in the East
All through my Challenge, right from our first tube change on Route 1 one of London's iconic buildings has always been there. At some point on each walk we have seen The Shard, looking over us on our way. Just as I was getting very tired there in front was The Shard, it seems to always appear when I need a boost. One day I'll go to the top and look at my Challenge route from above.

The Shard encouraging me to the end.
And finally to the end, Tower Hill junction, the end of Route 4 marking my half way mark and now the end of my penultimate walk. This will be that start of Route 8 - the final - and what a special day that will be.

The next photo from here will be with our two grown up children too as we are ALL doing the final 3 miles together. Some friends are joining us too so it could be a party all the way !!

End of Route 7 at Tower Hill
Everyone comments on my smiley face, I can tell the tired photos but I do try to smile each time as who wants to see a grumpy photo. I am also careful to have photo's from shoulders up as that bit of me is ok - however the photos don't always then show how tough this has been for me. It is a struggle to walk the 3 miles, I certainly could not without my Dad's stick or Hubby's arm (in fact I am considering having a stick anyway as I am now struggling to walk outside on my own).

To give a small glimpse of how slow I am - and my wobbling - Hubby took a short video of me walking along The Highway.


In my usual style it was a much needed glass of wine now we had finished Route 7, it's always nice to celebrate. We popped into St Olave's Church which is just opposite the Tower of London as it was where Samuel Pepys worshiped. Hubby is keen on his life and diary. Nearby we found a lovely pub The Crutched Friar for our celebratory drink.
The Crutched Friar
Well deserved treat
I still find it hard to believe we have completed Routes 1 - 7. I am so grateful to everyone who had supported me on the way - Hubby (who has been amazing), Dave & Agnes who kept us company on Route 4, Mike for the coffee, Virgin Trains for the transport and Majestic Docklands for the parking.



When I started Clare's Challenge 50 I didn't set a fundraising target - everyone has been so kind. The current amount raised is   £820.50  
an amazing amount thank you.

I have however now set a target and would be so so pleased if it reached £1000 by the time I finish Route 8.

Please could I ask everyone who reads this to post on social media about Clare's Challenge 50 and help me reach not only my personal goal to finish the London Marathon but to reach my fundraising goal too.


This is the link to my fundraising page - thank you for sharing



Hopefully this beautiful rainbow on our way home is a positive sign - we'll be doing Route 8           on 10th September from Tower Hill to The Mall. A really special day as it is my birthday and a year to the day that I announced Clare's Challenge 50. 

Dreams can come true